SOrry I haven't posted since Monday. TJ is doing fine, same as he was before the hospitalization. We're still struggling a bit to get his immuno-supressant level right. It keeps dropping then shooting up high. Once his belly gets steady again I think we'll have an easier time of it, unfortunately this is not the best for us to that.
We've been moving into our new house. We've got Living Room, Piano Room, and Kitchen pretty much set. We're working on Bedrooms today and hopefully will be sleeping there tonight.
TJ has a new "Big Boy" toddler bed. He proabably could have gone into a twin size, but with all the GI issues we continue to have, we didn't want to ruin a mattress. He is VERY excited about his big boy bed. We'll see how he sleeps in it tonight.
There is no internet yet at the house, so I'll be offline for a little while.
We have a biopsy again this Friday, they will be rechecking TJ for rejection, please pray that the treatment worked and that they find little to no rejection. If they do, we'll know on Saturday, I imagine the treatment will be the same as this last time. I think they would try the steroids one more time before jumping to something else, but I'm no doctor. I just pretend to be :) LOL!
Here's the latest we know about TJ's campaign - I posted this in the guestbook, but I'm not sure everyone saw it.
The amazing people in Erie raised $7400 at the Benefit, a huge THANK YOU! And round of applause to Rich, Jen, The M-80's and all the people involved that made that night possible.
The most recent balance from Karen is $66,118.
Add to that the $7400 and TJ's account is at $73,518!!
It's really close to his $75,000 Grant level. As Karen said, the deadline is September 26th.
COTA gives grants for the first year for every $25,000 a campaign raises. TJ has earned 2 - $2,500 grants so far. If he hits the $75,000 mark, he will receive a third $2,500 grant. Our deadline is this week, Friday, September 26.
I will post again as soon as I get internet. In the meantime I will have friends post in the guest book like we've done before.
Prayers please for Friday. Also Prayers for Baby Aidan. He's not doing very well. The doctors have been having some very serious talks with Joe & Julie (Aidan's mom & dad). These are talks that we were lucky and never had to have. So please pray for a miracle for that family, pray that healing comes swift and soon, he needs a change to happen today!
God Bless All, and much Love,
Lori