Let me just say, being without internet for over a week has left me with a sense of concern. I rely on the internet for WAAAAY too much. Friends, banking, friends, research, friends, directions, you know everything! I'm going to have to de-cyberize my life a little bit. I had no idea it had gotten that out of hand, LOL!

On to important things, How's TJ?

Well, as Karen reported, we had a great biopsy. A very mild 1A, almost a 0. They do nothing to treat a 1A, they assume even if you have a 0 that you're really a 1A anyways, they just missed missed the spots. So this is great news. The doctor's exact words were, "TJ responded very quickly and effectively to his treatment". Yeah TJ!!!!

They have continued to "Tweak" his medicine dose to try and stabilize his levels. We think we've gotten there, or at least pretty close. He can now go 2 weeks before his next blood draw. He'll go the week of the 13th, his birthday week.

His LFT's were a little up, not as high as before they dropped, but up a little. However, he came down with a bad cold the day after his biopsy and blood work. Some viruses can cause your liver numbers to go a little wacky, so I'm holding hope that's the cause and NOT that they are going back up.

We have stopped his probiotic. There was an issue with the Liver transplant patients and their probiotics, so they decided to hold off on TJ's f or a little bit and see what happens.

We are finally back to an even level with his GI issues too. We are back to the weaning schedule of Imodium and he's doing very well with it.

We are also weaning his Pepcid dose back and trying to see how he'll do without it. Pepcid is common for causing diarrhea, so if he can be off it, I want him off it. So far so good over the last week. We'll continue to taper off this week. If he does need it he'll have some reflux issues, heartburn.

TJ was very kind and shared his cold with Mommy and Daddy, wasn't that swell of him! I had to cancel one of my nights of lessons this week, my throat was pretty bad for 2 days. Today it seems better. He's been doing OK throughout his cold. He had 3 bad days, one with a fever, but since has been good. He has a runny nose and an occaisional cough, but activity and appetite are fine.

It's been cold and wet here so we've been keeping him inside. He's getting a little stir crazy but hopefully next week he'll be well enough to let go out again. 

His Physical Therapy is now over. He has improved incredibly. We are looking into Gymnastics as a possible follow up to it. His Physical Therapist thought he'd do very well at tumbling and gymnastics, and it would continue to help him with his weak areas. 

Our new home is great. We are still settling, we don't have pictures up and all our stuff here or put away yet, but it is our house and we all love it. Even TJ is starting to want to stay, that says a lot. 

He's sleeping great in his big boy bed. He sleeps pretty much through the night and doesn't scream bloody murder when he wakes up anymore. He gets himself out of bed comes into our room or down stairs depending on where we are. He always greets me with a "Good Morning Mommy", I love that. My heart melts everytime he says it.

Potty training continues, he's doing well and wearing pants and underwear for the most part of every day. I do put a diaper on him when he's tired and fighting his nap, it's the time he has the most accidents. I figure he's too tired to really focus well. But other than those times, he's good. Even staying dry for a couple hours when he sleeps. That impresses me.

Baby Aidan has been showing some signs of healing and improving. Please keep that little boy in your thoughts and prayers.

One last important thing - 

THANK YOU FOR ALL YOUR SUPPORT, TJ's CAMPAIGN HIT THE $75,000 mark in time for the grant. As Tara said, we barely made it, every donation really does count, even $10 and $20.

We will continue to support all fundraising efforts. My personal goal was to have $300,000 raised before his next transplant. We guesstimate 15 years for that. So we are 1/4 of the way there already. We have 14 years to raise the rest. 

I worry so much about his future. The thought that he may not be able to have his medicine or treatments because his medical coverage doesn't coverit  and we can't afford, it makes my stomach flip. I can't imagine, it hurts too much. So we have to raise money and be prepared for the what if's. 

Someone told me not to think about that right now and I just smiled and dropped it. I have to worry about that right now, if I didn't prepare for it what kind of parents would we be? We make decisions based on what we know will inevitiably have to happen. Yes, it may be 25 years intead of 10 or 220, but still the inevitiability is there. They can't stop the chronic rejection disease. 

So a HUGE THANK YOU to everyone for helping us reach our first bar, because we raised $75,000 and we receive the grants, we actually raised...

$82,500!! HOLY COW That's incredible. You are all Incredible!

God Bless everyone,

Lori